Help Charlie Heal
Charlie is a bright and shiny human. I’m lucky to be his Mama. Approximately 12 hours after he was born, Charlie began having seizures. An MRI revealed he had suffered two strokes affecting the right side of his brain. The strokes occurred in utero. Charlie's stroke may or may not be due to another condition he has called Craniosynostosis. This is when two skull plates fuse prematurely in the womb. It is going to take years to fully comprehend what the stroke will mean for Charlie's motor skills, cognitive and language development. Only time will tell how his brain will recover from the trauma. In the meantime, Charlie has the love of his family and us - a strong network friends to help him grow and heal.
Many of the posts below were originally published at the Help Charlie Heal Fund, an archive of updates for folks who have supported our family financially as we manage Charlie’s emerging health and medical needs. If you’re interested in making a contribution to Charlie’s medical care fund, you can do that here: www.paypal.com/paypalme/HelpCharlieHeal
Charlie is Entering Unknown Territory
New State, New Healthcare
Charlie is Walking!
Charlie’s Upsee
Botox & Braces
Charlie’s New Ride!
Talking the Talk
Routine EEG
Pre-School for Charlie
Video of First Steps
Updates & Evals
Charlie’s New Wheel Chair
Roll, Charlie, Roll
Feeding Therapy
What Does Charlie Do During His Therapy Sessions?
The S.T.E.P.S. Program
Orthotics & Leg Casting
Epilepsy
Love & Aquatherapy
What Does Cerebral Palsy Mean for Charlie?
Starting Sign Language
MRI: Understanding the Extent of Charlie’s Brain Damage
Early Childhood Intervention
Two Months Post-Op
Charlie’s Second Face
Five Days Post-Op & More About Charlie’s Dental Frenulum
Charlie’s First Birthday
Home From Surgery!
Charlie is Out of ICU
Preparing for Craniofacial Surgery
What Will Happen During Charlie’s Craniofacial Surgery?
Hematology Update
Our Community Responds
What is Craniosynostosis?
The Genetics Report
The Urology Report
The Neurology Report
The Cardiology Report
Home from the NICU
Charlie’s Birth Story